Useful Contacts and Support Organisations 

If you or someone you love has been affected by lung cancer, you don’t have to face it alone. There are many organisations across the UK that offer free information, emotional support, and practical advice.


Below you’ll find trusted organisations offering information, emotional support and practical advice. Some provide support across the UK, while others offer services specific to England, Scotland, Wales or Northern Ireland.

Lung Health and Respiratory Support

Asthma + Lung UK 

asthmaandlung.org.uk/                                                                                                         

The UK’s leading lung charity, providing trusted information, advice and support for people living with lung conditions, including lung cancer. They also campaign to improve lung health and fund research.

📞 Helpline: 0300 222 5800 (Monday–Friday, 9am–5pm)

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Roy Castle Lung Cancer Foundation

roycastle.org

We’re the only UK charity dedicated exclusively to supporting everyone affected by lung cancer.

📞 Nurse Helpline: 0800 358 7200 (Monday–Thursday, 9am–5pm; Friday, 9am–4pm)

📧 Email: info@roycastle.org

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General Cancer Information and Support

Black Women Rising

blackwomenrisinguk.org

A community supporting Black women affected by cancer through peer support, advocacy, awareness and wellbeing initiatives. Contact is primarily through the website and social media.

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Cancer Black Care

cancerblackcare.org.uk/

Provides support, information and advocacy for people affected by cancer from Black, mixed and ethnically diverse communities, helping to address cultural, emotional and practical needs.

📞 Telephone: 020 8961 4151

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Cancer Focus Northern Ireland

cancerfocusni.org

Provides care and support for people affected by cancer across Northern Ireland, including counselling, family support, wellbeing programmes and a nurse-led support line.

📞 Support Line: 0800 783 3339

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Cancer Research UK

cancerresearchuk.org/lung-cancer

Evidence-based cancer information and details about current clinical trials.

📞 Nurse Helpline: 0808 800 4040 (Monday–Friday, 9am–5pm)

📧 Email: supporter.services@cancer.org.uk

📋 Find a clinical trial

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Macmillan Cancer Support

macmillan.org.uk

Practical, emotional and financial support for anyone affected by cancer.

📞 Support Line: 0808 808 00 00 (7 days a week, 8am–8pm)

✆✉ Contact us 

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Maggie’s

maggies.org

Provides free emotional and practical support online, over the phone and in centres across the UK for people with cancer and those close to them.

📞 Support Line: 0300 123 1801

📌 Find your local centre (England, Scotland and Wales)

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Marie Curie

mariecurie.org.uk

Practical and emotional support for people with terminal illness and their families.

📞 Support Line: 0800 090 2309 (Monday–Friday, 8am–6pm; Saturday–Sunday, 10am–4pm)

📧 Email: support@mariecurie.org.uk

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Tenovus Cancer Care

tenovuscancercare.org.uk
Provides practical, emotional and financial support for anyone affected by cancer, including a free support line, counselling, benefits advice and support groups.

📞 Support line: 0808 808 1010
📧 Email: info@tenovuscancercare.org.uk

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World Cancer Research Fund (WCRF)

wcrf.org

Evidence-based information on cancer prevention and survival, healthy living and nutrition. WCRF also provides practical resources, recipes and guidance for people experiencing eating and nutrition challenges during and after cancer treatment.

📧 Supporter Services email: wcrf@wcrf.org

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Health Information Across the UK

NHS (England)

nhs.uk/conditions/lung-cancer

Trusted NHS information about symptoms, diagnosis, and treatment.

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NHS Inform (Scotland)

Scotland’s national health information service, providing trusted information on conditions, treatments, medicines and healthy living.

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NHS 111 Wales

https://111.wales.nhs.uk

Provides health advice and information for people living in Wales, including symptoms, conditions, treatments and local NHS services.

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Health and Social Care (Northern Ireland)

Official health information for Northern Ireland, including information about conditions, treatments, healthcare services and support.

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Patient.info

https://patient.info

Provides reliable, evidence-based information about medical conditions, medicines, tests and treatments, written for patients and reviewed by healthcare professionals.

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Emotional Wellbeing and Counselling

British Association for Counselling and Psychotherapy (BACP)

www.bacp.co.uk

The professional body for counsellors and psychotherapists in the UK. Offers information about counselling and a searchable directory of accredited therapists.

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Cruse Bereavement Support

cruse.org.uk

Free support for people who are grieving.

📞 Helpline: 0808 808 1677 (Monday, Wednesday–Friday, 9.30am–5pm; Tuesday, 1pm–8pm)

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Mind

mind.org.uk

Support and advice for anyone struggling with their mental health.

📞 Info Line: 0300 123 3393 (Monday–Friday, 9am–6pm except bank holidays)

📧 Email: info@mind.org.uk

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NHS Every Mind Matters

www.nhs.uk/every-mind-matters

Free, practical advice to help people look after their mental wellbeing. The website includes information on managing stress, anxiety, low mood, sleep problems and coping with difficult life events, as well as self-care tools and personalised support plans.

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Penny Brohn UK

www.pennybrohn.org.uk

A health and wellbeing charity that provides support, information, counselling, wellbeing programmes, and self-management help for people living with cancer.

📞 Telephone: 0303 300 0118

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Ruth Strauss Foundation

ruthstraussfoundation.com

Provides emotional and bereavement support for families facing the loss of a parent to cancer, and raises awareness of non-smoking lung cancers.

✆✉ Request support or stay in touch  

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Samaritans

www.samaritans.org

Confidential emotional support for anyone who is struggling to cope or needs someone to listen.

📞 Freephone: 116 123 (24 hours a day, 365 days a year)

📌 Find a branch near you (please note, not every branch offers face-to-face services)

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UK Council for Psychotherapy (UKCP)

www.psychotherapy.org.uk

A professional body for psychotherapists and psychotherapeutic counsellors. Provides information about psychotherapy and a directory to help people find qualified therapists.

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Support for Carers

Carers UK

www.carersuk.org

Provides information, advice, and support for unpaid carers. They offer guidance on carers’ rights, benefits, employment, financial support, health and wellbeing, as well as opportunities to connect with other carers through online forums and local services.

📞 Telephone: 0808 808 7777

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Financial, Work and Legal Support

Advice NI (Northern Ireland)

https://www.adviceni.net

Provides free, independent and confidential advice for people in Northern Ireland on benefits, debt, employment, housing and consumer rights.

📞 Telephone: 0800 915 4604

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British Red Cross

https://www.redcross.org.uk

Provides practical and emotional support to people facing illness or crisis, including support after hospital discharge, mobility services and help for carers in some areas.

📞 Telephone: 0344 871 1111

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Citizens Advice

citizensadvice.org.uk

Free, confidential advice on benefits, work, housing, and money.                                       

✆✉ Contact us

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Civil Legal Advice

https://www.gov.uk/civil-legal-advice

Provides free and confidential legal advice for eligible people in England and Wales through the legal aid scheme.

📞 Telephone: 0345 345 4345

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Disability Rights UK

https://www.disabilityrightsuk.org

A national charity led by disabled people, providing information and advice on benefits, employment, independent living, education and disability rights.

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GOV.UK – Benefits and financial support

gov.uk/browse/benefits/disability

Official information about financial help available for people with illnesses or disabilities.

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nidirect (Northern Ireland)

https://www.nidirect.gov.uk

Official government services website providing information on health, benefits, employment, social care and other public services relating to disability and carers’ benefits.

📞 Telephone: 0800 587 0912

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Turn2us

www.turn2us.org.uk

A national charity that helps people access financial support. They provide free tools to help people check their benefit entitlement, search for charitable grants, find advice services and understand the financial support available to them.

📝 Find an adviser

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Stopping Smoking

NHS Smokefree (England)

nhs.uk/better-health/quit-smoking

Free advice, tools, and support to help you quit smoking.

📞 Helpline: 0300 123 1044

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Quit Your Way (Scotland)

https://www.nhsinform.scot/healthy-living/stopping-smoking

Scotland’s national stop smoking service, offering free advice and support online, by phone and through local NHS services.

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Help Me Quit (Wales)

Provides free stop smoking support, information and access to local NHS Wales stop smoking services.

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Stop Smoking NI (Northern Ireland)

https://www.stopsmokingni.info

Free stop smoking support for people living in Northern Ireland, including local services and self-help resources.

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UK Support for Mutation-Driven Lung Cancer

ALK Positive UK

alkpositive.org.uk

Patient-led support and advocacy for people in the UK diagnosed with ALK-positive lung cancer.

📞 Helpline: 07975 623515

📧 Email: hello@alkpositive.org.uk

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EGFR Positive UK

egfrpositive.org.uk

Support and information for people affected by EGFR-mutated lung cancer, helping to raise awareness and improve access to treatment.

✆✉ Contact us

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ROS1ders UK

ros1ders-cancer.uk

A community and advocacy group for people with ROS1-positive lung cancer.

📧 Email: info@ros1ders-cancer.uk

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Mesothelioma UK

mesothelioma.uk.com

A national specialist resource centre supporting people living with mesothelioma, their carers, and health professionals.

📞 Freephone: 0800 169 2409 (Monday–Thursday, 9am–4pm; Friday, 9am–3pm)

📧 Nurse email: support@mesothelioma.uk.com

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ThymicUK

thymicuk.org

A support group for people with thymic cancers and tumours, providing information and community links.

✆✉ Contact us

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International Support for Mutation-Driven Lung Cancer

KRAS Kickers

kraskickers.org
International community offering education, advocacy, and peer support for people with KRAS-mutated lung cancer.

🌐 Join the community

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MET Crusaders

metcrusaders.org

A global patient advocacy organisation for people with MET-driven cancers, including lung cancer.

📧 Email: marcia@metcrusaders.org

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Exon 20 Group

exon20group.org

International support and advocacy for patients with EGFR Exon 20 insertion mutations and HER2 mutations.

🌐 Join the community (free)

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ROS1ders

www.theros1ders.org

Global support community for people with ROS1+ cancers, including lung cancer

✆✉ Contact Us

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Last updated: July 2026


We aim to keep this information up to date, but contact details and services may change. Please visit the organisation’s website for the latest information. If you know of an organisation that should be added to this page, please email info@roycastle.org