Useful Contacts and Support Organisations 

If you or someone you love has been affected by lung cancer, you don’t have to face it alone. There are many organisations across the UK that offer free information, emotional support, and practical advice.


Below you can find trusted sources of help and support.

Lung Cancer Support, Information and Advocacy

Roy Castle Lung Cancer Foundation

roycastle.org

We’re the only UK charity dedicated exclusively to supporting everyone affected by lung cancer.

📞 Nurse Helpline: 0333 323 7200 (Monday–Thursday, 9am–5pm; Friday, 9am–4pm)

📧 Email: info@roycastle.org

Macmillan Cancer Support

macmillan.org.uk

Practical, emotional and financial support for anyone affected by cancer.

📞 Support Line: 0808 808 00 00 (7 days a week, 8am–8pm)

✆✉ Contact us 

Cancer Research UK

cancerresearchuk.org/lung-cancer

Evidence-based cancer information and details about current clinical trials.

📞 Nurse Helpline: 0808 800 4040 (Monday–Friday, 9am–5pm)

📧 Email: supporter.services@cancer.org.uk

📋 Find a clinical trial

Marie Curie

mariecurie.org.uk

Practical and emotional support for people with terminal illness and their families.

📞 Support Line: 0800 090 2309 (Monday–Friday, 8am–6pm; Saturday–Sunday, 10am–4pm)

📧 Email: support@mariecurie.org.uk

NHS

nhs.uk/conditions/lung-cancer

Trusted NHS information about symptoms, diagnosis, and treatment.

ALK Positive UK

alkpositive.org.uk

Patient-led support and advocacy for people in the UK diagnosed with ALK-positive lung cancer.

📞 Helpline: 07975 623515

📧 Email: hello@alkpositive.org.uk

EGFR Positive UK

egfrpositive.org.uk

Support and information for people affected by EGFR-mutated lung cancer, helping to raise awareness and improve access to treatment.

✆✉ Contact us

ROS1ders UK

ros1ders-cancer.uk

A community and advocacy group for people with ROS1-positive lung cancer.

📧 Email: support@ros1ders-cancer.uk

Mesothelioma UK

mesothelioma.uk.com

A national specialist resource centre supporting people living with mesothelioma, their carers, and health professionals.

📞 Freephone: 0800 169 2409 (Monday–Thursday, 9am–4pm; Friday, 9am–3pm)

📧 Nurse email: support@mesothelioma.uk.com

ThymicUK

thymicuk.org

A support group for people with thymic cancers and tumours, providing information and community links.

✆✉ Contact us

Ruth Strauss Foundation

ruthstraussfoundation.com

Provides emotional and bereavement support for families facing the loss of a parent to cancer, and raises awareness of non-smoking lung cancers.

✆✉ Request support or stay in touch  

Emotional and Practical Support

Maggie’s Centres

maggies.org

Free emotional and practical in-person support in centres across the UK.

📌 Find your local centre

Mind

mind.org.uk

Support and advice for anyone struggling with their mental health.

📞 Info Line: 0300 123 3393 (Monday–Friday, 9am–6pm except bank holidays)

📧 Email: info@mind.org.uk

Cruse Bereavement Support

cruse.org.uk

Free support for people who are grieving.

📞 Helpline: 0808 808 1677 (Monday, Wednesday–Friday, 9.30am–5pm; Tuesday, 1pm–8pm)

Financial and Work Support

Citizens Advice

citizensadvice.org.uk

Free, confidential advice on benefits, work, housing, and money.                                       

✆✉ Contact us

GOV.UK – Benefits and financial support

gov.uk/browse/benefits/disability

Official information about financial help available for people with illnesses or disabilities.

Stopping Smoking

NHS Smokefree

nhs.uk/better-health/quit-smoking

Free advice, tools, and support to help you quit smoking.

📞 Helpline: 0300 123 1044

International Lung Cancer Biomarker Support (Global Networks)

KRAS Kickers

kraskickers.org
International community offering education, advocacy, and peer support for people with KRAS-mutated lung cancer.

🌐 Join the community

MET Crusaders

metcrusaders.org

A global patient advocacy organisation for people with MET-driven cancers, including lung cancer.

📧 Email: marcia@metcrusaders.org

Exon 20 Group

exon20group.org

International support and advocacy for patients with EGFR Exon 20 insertion mutations and HER2 mutations.

🌐 Join the community (free)

Last updated: November 2025
If you know of an organisation that should be added to this page, please email info@roycastle.org.