Useful Contacts and Support Organisations 

If you or someone you love has been affected by lung cancer, you don’t have to face it alone. There are many organisations across the UK that offer free information, emotional support, and practical advice.


Below you can find trusted sources of help and support.

Lung Cancer Support and Information

Roy Castle Lung Cancer Foundation

roycastle.org

We’re the only UK charity dedicated exclusively to supporting everyone affected by lung cancer.

📞 Nurse Helpline: 0333 323 7200 (Monday–Thursday, 9am–5pm; Friday, 9am–4pm)

📧 Email: info@roycastle.org

NHS

nhs.uk/conditions/lung-cancer

Trusted NHS information about symptoms, diagnosis, and treatment.

Macmillan Cancer Support

macmillan.org.uk

Practical, emotional and financial support for anyone affected by cancer.

📞 Support Line: 0808 808 00 00 (7 days a week, 8am–8pm)

✆✉ Contact us 

Cancer Research UK

cancerresearchuk.org/lung-cancer

Evidence-based cancer information and details about current clinical trials.

📞 Nurse Helpline: 0808 800 4040 (Monday–Friday, 9am–5pm)

📧 Email: supporter.services@cancer.org.uk

📋 Find a clinical trial

Marie Curie

mariecurie.org.uk

Practical and emotional support for people with terminal illness and their families.

📞 Support Line: 0800 090 2309 (Monday–Friday, 8am–6pm; Saturday–Sunday, 10am–4pm)

📧 Email: support@mariecurie.org.uk

Wellbeing and Practical Support 

Maggie’s Centres

maggies.org

Free emotional and practical in-person support in centres across the UK.

📞 Support Line: 0300 123 1801

📌 Find your local centre

Penny Brohn UK

www.pennybrohn.org.uk

A health and wellbeing charity that provides support, information, counselling, wellbeing programmes, and self-management help for people living with cancer.

📞Telephone: 0303 300 0118

NHS Every Mind Matters

www.nhs.uk/every-mind-matters

Free, practical advice to help people look after their mental wellbeing. The website includes information on managing stress, anxiety, low mood, sleep problems and coping with difficult life events, as well as self-care tools and personalised support plans.

Samaritans

www.samaritans.org

Confidential emotional support for anyone who is struggling to cope or needs someone to listen.

📞Freephone: 116 123 (24 hours a day, 365 days a year)

📌Find a branch near you (please note, not every branch offers face-to-face services)

Mind

mind.org.uk

Support and advice for anyone struggling with their mental health.

📞 Info Line: 0300 123 3393 (Monday–Friday, 9am–6pm except bank holidays)

📧 Email: info@mind.org.uk

Carers UK

www.carersuk.org

Provides information, advice, and support for unpaid carers. They offer guidance on carers’ rights, benefits, employment, financial support, health and wellbeing, as well as opportunities to connect with other carers through online forums and local services.

📞Telephone: 0808 808 7777

Cruse Bereavement Support

cruse.org.uk

Free support for people who are grieving.

📞 Helpline: 0808 808 1677 (Monday, Wednesday–Friday, 9.30am–5pm; Tuesday, 1pm–8pm)

Ruth Strauss Foundation

ruthstraussfoundation.com

Provides emotional and bereavement support for families facing the loss of a parent to cancer, and raises awareness of non-smoking lung cancers.

✆✉ Request support or stay in touch  

World Cancer Research Fund (WCRF)

www.wcrf.org

Evidence-based information on cancer prevention and survival, healthy living and nutrition. WCRF also provides practical resources, recipes and guidance for people experiencing eating and nutrition challenges during and after cancer treatment.

📧Supporter Services email: wcrf@wcrf.org

Financial and Work Support

Citizens Advice

citizensadvice.org.uk

Free, confidential advice on benefits, work, housing, and money.                                       

✆✉ Contact us

GOV.UK – Benefits and financial support

gov.uk/browse/benefits/disability

Official information about financial help available for people with illnesses or disabilities.

Turn2us

www.turn2us.org.uk

A national charity that helps people access financial support. They provide free tools to help people check their benefit entitlement, search for charitable grants, find advice services and understand the financial support available to them.

📝Find an adviser

Stopping Smoking

NHS Smokefree

nhs.uk/better-health/quit-smoking

Free advice, tools, and support to help you quit smoking.

📞 Helpline: 0300 123 1044

UK Based Support for Mutation-Driven Lung Cancer

ALK Positive UK

alkpositive.org.uk

Patient-led support and advocacy for people in the UK diagnosed with ALK-positive lung cancer.

📞 Helpline: 07975 623515

📧 Email: hello@alkpositive.org.uk

EGFR Positive UK

egfrpositive.org.uk

Support and information for people affected by EGFR-mutated lung cancer, helping to raise awareness and improve access to treatment.

✆✉ Contact us

ROS1ders UK

ros1ders-cancer.uk

A community and advocacy group for people with ROS1-positive lung cancer.

📧 Email: info@ros1ders-cancer.uk

Mesothelioma UK

mesothelioma.uk.com

A national specialist resource centre supporting people living with mesothelioma, their carers, and health professionals.

📞 Freephone: 0800 169 2409 (Monday–Thursday, 9am–4pm; Friday, 9am–3pm)

📧 Nurse email: support@mesothelioma.uk.com

ThymicUK

thymicuk.org

A support group for people with thymic cancers and tumours, providing information and community links.

✆✉ Contact us

International Support for Mutation-Driven Lung Cancer

KRAS Kickers

kraskickers.org
International community offering education, advocacy, and peer support for people with KRAS-mutated lung cancer.

🌐 Join the community

MET Crusaders

metcrusaders.org

A global patient advocacy organisation for people with MET-driven cancers, including lung cancer.

📧 Email: marcia@metcrusaders.org

Exon 20 Group

exon20group.org

International support and advocacy for patients with EGFR Exon 20 insertion mutations and HER2 mutations.

🌐 Join the community (free)

ROS1ders

Global support community for people with ROS1+ cancers, including lung cancer

www.theros1ders.org

Last updated: June 2026


If you know of an organisation that should be added to this page, please email info@roycastle.org.