We have been approached by a number of projects working to improve treatment for people with lung cancer. Below is a list of some of the ways you can get involved.
If you are interested in getting in any of these projects, please complete the form below. Alternatively, you can call or email Lorraine Dallas on 0333 323 7200 or lorraine.dallas@roycastle.org:
NOMADIC: Research on thrombocytosis in lung cancer
Thrombocytosis is a disorder in which your body produces too many platelets. It can be a sign for potential cancer, including lung cancer. This research project is looking for people to engage in the development of their study and share views on their experience.
United Kingdom Lung Cancer Coalition (UKLCC): Improve lung cancer outcomes
The UKLCC is an umberella group of clinicians, charities and pharmaceutical companies working to improve lung cancer outcomes. They are looking for experienced patient advocates to become more involved in their work.
University of Glasgow and NHS clinicians: CoChat
Researchers from University of Glasgow and NHS Clinicians are co-designing a collaborative chatbot called CoChat to empower patients and enhance collaborations between patients and healthcare providers for better self-management of lung cancer.
CoChat will harness cutting-edge AI to make lung cancer knowledge more accessible and available, so patients can learn and ask self-management questions such as diet and side effects through it anytime anywhere, without having to wait until the next appointment with clinicians.
Moreover, CoChat will also inform when to involve providers, and enable healthcare providers to easily review conversations through automatic summarisation so more personalised and timely support will be possible, so it is collaborative in nature.
University of Birmingham: Proposed trial on blood clots
A group of respiratory researchers at the University of Birmingham would like you hear your views regarding a proposed trial.
Blood clots (venous thromboembolism) are common in people with cancer including lung cancer. These tend to be in either the legs (deep vein thrombosis) or lungs (pulmonary embolism). These blood clots can worsen symptoms, quality of life and rarely cause death in people with cancer.
Treatment with “blood thinning” medications can reduce the chances of blood clots occurring in patients with cancer and these medicines are widely used in lots of conditions. There is currently not enough information about whether blood thinning medicines should be given to people with different types of cancers to prevent blood clots. This is because the benefits of preventing blood clots needs to be balanced against the small risk of bleeding that these medicines can have.
A trial will be taking place to try and answer this question by seeing if a type of tablet blood thinning medicine can help. You can support this work by completing this short survey: https://forms.gle/siBTWrkeLPphbemk8