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Lung cancer support groups

Coronavirus Update

We know that many local lung cancer support groups will be suspended following the government advice that people who are immunocompromised should avoid social contact.  This is the case for most people who are having or have had lung cancer treatment. We are also aware that many of the group facilitators are Lung Cancer Nurse specialist who will be prioritising essential NHS services. We are currently looking at whether we can provide phone and online groups, please monitor the website for further information. If you need information on your local services please check with your lung cancer team.

Sometimes a diagnosis of lung cancer can make you feel alone and afraid. Getting to know other people who have similar experiences can be helpful. One of the ways we try and do this is by running local lung cancer support groups for anyone affected by the disease. We currently have 45 support groups around the UK and have plans for even more soon.

Roy Castle Lung Cancer information Support Groups

Why join a lung cancer support group?

A support group can provide useful information about the impact of lung cancer. Groups often have invited speakers with specialist knowledge on areas like side effects of treatment, new therapies, financial advice and healthy eating.

“When I was first invited after my diagnosis, I thought, “No Way.” My wife was thinking the same thing, but we daren’t tell each other, so we went… It completely lifted us out of the gutter, lifted us no end. I would recommend it to anyone.”

Dougie, support group member

Find your nearest support group

Who can join a support group?

Most lung cancer support groups are open to people who are being treated for lung cancer and those who have completed treatment. Equally important members are family and carers who can find it helpful to share thoughts and feelings with others who are looking after relatives.

“It’s helped me tremendously; you’re made to feel so welcome. It’s like a readymade family and I love going.”

Anne, support group member

How are the lung cancer support groups run?

Most groups are run by a Clinical Nurse Specialist, or other skilled professional involved in the care of people with lung cancer. These facilitators will usually organise the group meetings and may have special training to help them run the groups.

“On diagnosis your life seems to lose all direction and support groups are wonderful ways to access all the help and advice available in a friendly, surprisingly humorous and relaxed atmosphere. These groups are all expertly supervised by a widely experienced Clinical Nurse Specialist”.

Robert, support group member

When do the lung cancer support groups meet?

Most support groups meet monthly at a time and place that is suitable for members. This is often during an afternoon, sometimes at a centre in the hospital of in a local hotel or community venue.
Your local lung cancer information and support group provides an opportunity for people affected by lung cancer to come along and chat with people in a similar situation.

If there is not a group near you at present, do get in touch as we are keen to support new groups where there is an interest. Please email nicola.forrest@roycastle.org